Friday, October 5, 2012

nausea and back pain

The night after my chemo, when I took the nasty oral dose at home instead of the IV dose, I was so nauseated I barely slept and remained so until  10:00 am when I got more chemo and got and IV zofran instead of an oral.  I told mom I wanted some kind of pastry sweet for breakfast and so she made me and poppy seed almond cake.

I did good all day until the evening my back started hurting because my body started producing heavy replacements and took 2 tylenol before I went to bed.  I woke up at 2:00 am this morning and had to take 1 ondesetron (loritab) instead my back hurt so bad, then went back to bed and slept really well.  I feel okay this morning so far, but woke up and realized my head was itchy and my pillow looked like the cat had slept on it.  So, I called Amber and she'll be around tonight to give me a buzz.

counts:
N/A (see yesterdays -chemo +body rebuild = my guesstimate)

Thursday, October 4, 2012

Day One Aftermath

I didn't sleep well, I either was super nauseated or had to pee, and when I went pee I could smell the Mensa and coffee and got nauseated again, would lay down to sleep for twenty minutes to an hour then have to do it all over again.  I finally went to sleep after listening to Phantom of the Opera for the first half hour for five hours.  I feel like what I imagine a hang  over feels like.  I will never agree to taking the Mensa orally instead of through the IV again that was disgusting and haunted me all night.  Sleeping was already hard enough considering I've had tachycardia (a faster that normal heart rate) the last couple of weeks.

Wednesday, October 3, 2012

Long Day of Chemo

Wow, talk about a long day at the hospital, my appointment was at 8:00am and I ended up being there until 6pm, they wanted to keep me until 8:30pm so I could take this last chemo through my IV but decided to send me home with the oral version.  Which was a liquid that tasted suspiciously like a permanent smells.  I nearly threw up after trying to quickly consume the first half in one gulp, then after being horrified at the thought of drinking the other half, mixed it with dark coffee and two hot chocolate packets and nausea meds.

My LP went pretty well other than he went right through a tight muscle I had going on which is NOT pleasant, though there's no way of noticing that.  Chemo every day now with extra chemo and the LP once a week for a month, then we'll see where I'm at.

Thank you for your prayers, and since god is a smart alek, my neutrophils were exactly .7. ;)  My platelets took a huge jump so the doctor figured we were pretty safe to go ahead.

counts:
WBC= 2.6
HCT= 31
PLT= 200

Tuesday, October 2, 2012

Just Hanging Out

I've just been hanging out, watching Vampire Diaries, playing animal crossing (on the DS since my wii is broken) and working on my project, which is ALMOST done.  Nothing really new to report, I go in for chemo tomorrow.  Jake's switching jobs, he gets a dollar less pay but we qualify for food stamps.

Counts
N/A (will update those tomorrow)

Thursday, September 27, 2012

A few days update

Okay, so the rash is foliculitis from having a low immune system, and I still have it.  Lisa and Jim brought me some oatmeal bath, which made the first set at least start to come to a head, I think I'll try some again tomorrow.

I have been working on a special project and going to school, and the classes require a bit more concentration than the last ones.  I'm taking marketing right now.

Yesterday I went to get chemo and still don't have quite enough neutrafils to start consolidation again, so everyone pray I have enough next time, otherwise they'll have to go back and start me on induction phase II instead, and put everything off another month.

Winter tried to fake a cold while we were in there, and then cried when I had grandma take her into another part of the ward to make sure.  We think she was trying to be sick like mommy.

counts as of 9/26
WBC= 1.7
HCT= 27.8
PLT= 100

Friday, September 21, 2012

False Alarm

I woke up at midnight last night with a rash on my back and panicked that it was shingles, and told mom and baby to evacuate and called the doc.  I had had a headache and a little bit of a sore throat, and called my doctors to make an appointment.  I woke up Jake and had him drive me down to LDS, they checked me over, and fortunately decided that I didn't have shingles, and said that Winter should be fine since she had already got the chicken pox vaccine.

They determined that its a type of rash accompanied with swelling that is a possible side effect of prednesone.  Why am I not more surprised?

Anyway, they prescribed me some anti-itch stuff and we got most of my meds refilled while we were down there and I had a little longer than usual to chat with my husband.  It was actually good that we sent mom and Winter away, since mom's car had a flat tire and we drove a whole lot further than they did.  Mom's story turned out well as well though because she was able to call triple A and get a free repair at Discount Tires.  Yay!

Winter is not happy that I won't kiss her up because I don't want to give her a sore throat and she's being really needy tonight.


Counts
N/A

Wednesday, September 19, 2012

Double Day Update

I did not get any chemo.  After heading down to the hospital and finding out I'm supposed to get an LP every time this round as well, also was told they weren't giving me any chemo because my ANC is critical again (in other words, I have no existing immune system).  I've been off the steroids, but still in pain from them and taking pain meds to sleep and walking like a pirate the rest of the day (it is national talk like a pirate day after all).  If I don't see improvement tomorrow I'm going to call and discuss it with the triage  nurse.

I went to the gyno today and got my clean bill of health  and Winter got her booster shot and mom got her flu shot, hopefully it protects her.  Winter and Jake apparently still need theirs, the flu shot wasn't mentioned to Jake for Winter, so he assumed she didn't need it, and he just hasn't got his yet.

I'm working on a couple of projects and waiting for my next class to start, and everything else is good.  Heather made zuppa toscana tonight and her zuppa is pretty awesome. :)